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Living Well with PAH
Living Well with PAH
Relationships, intimacy, and work are just some important elements that, alongside physical health, greatly contribute to a person’s quality of life. Living with PAH can influence many, if not all, parts of life and therefore it’s important to recognise the holistic needs of those living with the condition.
Certain activities can become more challenging and often adjustments are needed.[1] Coming to terms with this and the subsequent lifestyle changes often affects a person’s physical, emotional and social wellbeing.[1]
Although it can be challenging, with the right support, PAH can be managed and a good quality of life can be achieved.
It can take time for you and your loved ones to adapt to living with PAH.
You are not alone. Other people living with PAH have gone through similar experiences and many people including your family and friends, healthcare professionals and patient organisations can provide support to help you manage the condition.
By speaking to people living with PAH and the PH community – including healthcare professionals and patient groups – insights and practical tips have been gathered to help support you with managing and living well with PAH.
Below we explore four aspects of daily life – click on the icons to learn more.
Relationships, intimacy and family planning
Employment and careers
Inspiring stories
Mental health
References
[1]
IFPA. Psoriasis is a serious disease deserving global attention. Available at: https://ifpa-pso.com/wp-content/uploads/2017/01/Brochure-Psoriasis-is-a-serious-disease-deserving-global-attention.pdf Accessed: June 2020.
[3]
NHS. Living with psoriasis. Available at: https://www.nhs.uk/conditions/psoriasis/living-with/ Accessed: June 2020.
[8]
NHS. Clinical depression. Available at: https://www.nhs.uk/conditions/clinical-depression/symptoms/ Accessed: June 2020.
[9]
MIND. Depression. Available at: https://www.mind.org.uk/information-support/types-of-mental-health-problems/depression/symptoms/ Accessed: June 2020.
[10]
Pulse Today. Almost half of GP consultations ‘now include a mental health issue’. Available at: http://www.pulsetoday.co.uk/clinical/clinical-specialties/mental-health/almost-half-of-gp-consultations-now-include-a-mental-health-issue/20036839.article Accessed: June 2020.
[11]
NHS. CBT. Available at: https://www.nhs.uk/conditions/cognitive-behavioural-therapy-cbt/ Accessed: June 2020.